New year, New medicine. We are trying a new medication. Due to set backs and difficulties during October my son has undergone some changes in medication. He is still using the Lithium that was started over a year ago and the Lamictal. He was taken off Lexapro, Wellbutrin, Strattera, and Benzapin. The relatively new Em/Sam patch was added. It is an MAOI so we have to be aware of what he eats and other over the counter medications he might take.
I began this post more than three months ago. My son is still on the EM/SAM patch and doing well. He is doing better in school and showing more interest and patients than with previous medication changes. So far we have not seen any major side-effects. The trembling that had been in his hands for the past several years has gone and he is once again able to write. I am not going to say that EM/SAM is a miracle drug; not by any means. I am realistic enough to know that there is no permanent "fix." As with all the other medications this is the honeymoon and it will end when the levels of this drug become toxic or he has a hormonal change that causes the results to change. For now I am thankful for this time. I have a child, who is for the moment, a normal teenager. He goes out and shoots hoops with the neighbor kids. I can leave him at home alone for an hour or two and not worry about what I will find when I get home.
I am sure all of you realize, but I will say it again, just because this combination of drugs is working for my child there is no guarantee that it will work for your child or even continue to work for mine. Bipolar disorder is very fickle. It is so unpredictable and after all of these years all that we can really count on is the fact that what we expect to happen will not be the outcome.
Friday, December 29, 2006
Monday, October 16, 2006
Set Backs
I have finally finished school and will attend graduation on November 3rd. It has been a long and exhausting process, but for now it is complete. My son has suffered a set back. After doing so well for the past year and getting off to a fabulous start at the begining of the school year. Perhaps it was the stress from the school load, the medication or just the change of season. I am not sure we will ever really understand what happens when the mind fractures or how to put it back together. Jordan, now 13, was on seven medications and had been stable and doing very well. Now he is down to three medications. When he experienced his latest episode the only answer was to eliminate a medication. There were too many in his system to add another safely. The psychiatrist chose to add the new EM/SAM patch which is an MAO Inhibotor. So that meant eliminating Wellbutrin, Lexapro, Strattera, and a portion of the Lamictal. It was a rough task, but Jordan survived it. He is becoming more stable on the new medication. He is back to school, but it will be a while before he reaches where he was before this latest episode. It is difficult when we can not understand what has happened inside the mind and why it took place so suddenly without notice. Perhaps it has something to do with the seasonal changes or puberty but I guess we will never know.
Wednesday, July 12, 2006
Only One Child, A Million Teachers
Thank you all for haning in there and continuing to check this blog on a regular basis regardless of the lack of new information. I am now in my last semester of school and have maintained a 4.0 so you know why I don't have the time to blog. As for life in Texas it is going well. Jordan managed to finish the seventh grade on the A/B honor roll. This just goes to prove to everyone that when someone tells you that your child can't learn and will never be sucessful don't believe them and let someone keep your child from being sucessful.
I am glad that I removed Jordan from the school he was in. I know that not everyone can move to another state, but you can make changes in your child's education that will help your child to be sucessful. Even if you can't afford a private school you do have a right to move your child to another school in the district where he/she has a better chance to get what they really need. It is really difficult to fight the school district even if you have experience in the area of education. The special education team in Indiana really made my life and my child's life miserable. As I look back now and have had more experience with a district where things are done by the book it is truely appaling what we went through in Indiana.
I want to assure all of the parents of a bipolar child, who are still struggling on a daily basis, that there is hope. I had been to the end of my rope and was ready to throw in the towel when I made a change in my childs educational future. Of course, I had made other changes prior to this one, that were not as sucessful, but I kept trying. I believed in my child and his incredibly intelligent mind. I refused to let educators tell me what was best for my child. They assured me that they knew all about "children like mine" and had worked with hundreds of them. I was told that my child was simply manipulative and needed to be punished until he learned to do as he was told. In Texas the educational system truely did understand my child and choose to educate him as opposed to disipline him. He was not suspended by the Texas schools but remained at school to learn and he did learn.
Jordan has grown so much in the last year and I no longer dread the beginning of the school year. I know that he will continue to thrive. We still have set backs, after all, the fact that he is bipolar has not changed; just the way he is being educated. What I really want to tell all of you is don't give up on your child. The fight can be hard and at times it seems you will never win, but press on because your child is the most important person in the world. Don't ever let anyone tell you that any child is incapable of learning. Perhaps the teacher's style is just not conducisive to your child's style of learning. There are millions of teachers but there is only one child, yours. Good luck to all as we move into the new school year.
I am glad that I removed Jordan from the school he was in. I know that not everyone can move to another state, but you can make changes in your child's education that will help your child to be sucessful. Even if you can't afford a private school you do have a right to move your child to another school in the district where he/she has a better chance to get what they really need. It is really difficult to fight the school district even if you have experience in the area of education. The special education team in Indiana really made my life and my child's life miserable. As I look back now and have had more experience with a district where things are done by the book it is truely appaling what we went through in Indiana.
I want to assure all of the parents of a bipolar child, who are still struggling on a daily basis, that there is hope. I had been to the end of my rope and was ready to throw in the towel when I made a change in my childs educational future. Of course, I had made other changes prior to this one, that were not as sucessful, but I kept trying. I believed in my child and his incredibly intelligent mind. I refused to let educators tell me what was best for my child. They assured me that they knew all about "children like mine" and had worked with hundreds of them. I was told that my child was simply manipulative and needed to be punished until he learned to do as he was told. In Texas the educational system truely did understand my child and choose to educate him as opposed to disipline him. He was not suspended by the Texas schools but remained at school to learn and he did learn.
Jordan has grown so much in the last year and I no longer dread the beginning of the school year. I know that he will continue to thrive. We still have set backs, after all, the fact that he is bipolar has not changed; just the way he is being educated. What I really want to tell all of you is don't give up on your child. The fight can be hard and at times it seems you will never win, but press on because your child is the most important person in the world. Don't ever let anyone tell you that any child is incapable of learning. Perhaps the teacher's style is just not conducisive to your child's style of learning. There are millions of teachers but there is only one child, yours. Good luck to all as we move into the new school year.
Sunday, March 12, 2006
Book Recommendation
What It Takes To Pull Me Through was written by David L. Marcus and published by Houghton Mifflin Company, 2005. This was an inspiring book about the lives of teens, four in particular, who are committed to a fourteen-month program for troubled youth. Marcus guides us through their treatment and turmoil from within their group. Marcus tells us profound secrets of teens balancing on the edge between life and death. These teens have experienced events that steal childhood and force adult issues on children. Drugs, pregnancy, rape, overwhelming depression, mental disorders, eating disorders, sexual encounters, parental death, and teens out of control are some of the issues brought to light. Marcus guides us to feel the pain and the triumph of each teen. We yearn for them to succeed and we feel their anguish as our own when they experience a set-back.
In my personal opinion this is a heart wrenching story of kids gone wrong. It displays not only what can happen in the shadow of inner-cities, but also in the wealthiest suburbs where children are given every advantage. I would recommend What It Takes to Pull Me Through to every parent, especially those who believe tragedy only happens to other families, parents who think they know their children, parents who "“know", without a doubt, that their children always will come to them with every problem: this book is for them. This book illustrates what every parent fears most, the loss of a child. A loss, not to a tragic car accident, but to the slow and painful self-destruction of a teenager at the precipice of life and death; a childhood that never will be fulfilled due to over-indulgence by a consumer society that teaches money can buy happiness.
In my personal opinion this is a heart wrenching story of kids gone wrong. It displays not only what can happen in the shadow of inner-cities, but also in the wealthiest suburbs where children are given every advantage. I would recommend What It Takes to Pull Me Through to every parent, especially those who believe tragedy only happens to other families, parents who think they know their children, parents who "“know", without a doubt, that their children always will come to them with every problem: this book is for them. This book illustrates what every parent fears most, the loss of a child. A loss, not to a tragic car accident, but to the slow and painful self-destruction of a teenager at the precipice of life and death; a childhood that never will be fulfilled due to over-indulgence by a consumer society that teaches money can buy happiness.
Wednesday, February 22, 2006
The Dumbing Down of American Education
What has happened to No-Child-Left-Behind? It began with so much promise but seems to have lost some of its zeal in the shadow of Iraq or Afghanistan. We may be able to turn out soldiers in America, but we slowly seem to be losing the ability to turn out scholars. No where has this become more apparent to me than a private college in Dallas, Texas.
The counselor was extremely helpful and worked diligently to get me enrolled. He gave me the information packet and assured me that it was a great program. I felt that I asked all the right questions. Is the program recognized by the ABA? He assured me that the program was accredited and job placement was assured, but not guaranteed. There is no accreditation. Upon seeing the counselor a few weeks into the program,he discovered that I was unhappy and he apologized profusely. He said that he just tells people what the college instructs him to. I even spoke to the President of the school to bring an issue to her attention, she assured me that she would call or email me with her findings. This was just more lip-service; I never heard from her.
I began the program with high hopes and high expectations, concerned that I would find it difficult to maintain my 4.0 in what sounded like such a comprehensive program. I naively assumed that the program would be worth what I considered the exorbitant price of nearly $30K for a two-year degree. I justified the cost in my mind by the convenience of the class schedule. It was geared toward adults with children and with jobs who were considering a career change.
I had researched and done my homework -or so I believed- until the first week of classes. I assured myself that I was over-reacting. There was no reason to panic just because many students in my Composition I class didn’t know what a verb was and could not pick one out in a sentence. The instructor seemed knowledgeable and professional, yet he too "dumbed down" his class. There would be no homework, nor would there be any long term papers; we would do most class work in pairs or small groups and the way to get an “A” would be to show up for class. The class continued to struggle through the syntax of the English language and I became the "floater," that would be the person who went around and helped others with their work. I knew I had much to learn about writing, but little of it would happen in this class.
The program director teaches my first class of the day. On a good day she is 30 minutes late. The first hour is usually lost to waiting and then conversation. Sometimes the second hour is dedicated to learning, but not always. I am continually asking myself, "What I am doing here?" a question the instructor asked me after a few days in class. An Intro Class was not what I needed after having finished the first year of a similar program in Indiana, but it was a requirement. I couldn't help but wonder how this school developed such a program! There are so many incredible programs in other areas that they could have modeled, but instead they seem to have flung together a high-priced imitation that is severely lacking in credibility and substance.
I have consistently dedicated myself to learning, whether I was enrolled in school or not I feel there is something to learn every day. Each book I read and every situation I encounter offers some knowledge that I didn't have before. Perhaps now I am to learn tolerance, patience-- or new ways to waste time and money! It is a shame that colleges don't have to abide by the same standards as public schools. I am too old to be a soldier.
The counselor was extremely helpful and worked diligently to get me enrolled. He gave me the information packet and assured me that it was a great program. I felt that I asked all the right questions. Is the program recognized by the ABA? He assured me that the program was accredited and job placement was assured, but not guaranteed. There is no accreditation. Upon seeing the counselor a few weeks into the program,he discovered that I was unhappy and he apologized profusely. He said that he just tells people what the college instructs him to. I even spoke to the President of the school to bring an issue to her attention, she assured me that she would call or email me with her findings. This was just more lip-service; I never heard from her.
I began the program with high hopes and high expectations, concerned that I would find it difficult to maintain my 4.0 in what sounded like such a comprehensive program. I naively assumed that the program would be worth what I considered the exorbitant price of nearly $30K for a two-year degree. I justified the cost in my mind by the convenience of the class schedule. It was geared toward adults with children and with jobs who were considering a career change.
I had researched and done my homework -or so I believed- until the first week of classes. I assured myself that I was over-reacting. There was no reason to panic just because many students in my Composition I class didn’t know what a verb was and could not pick one out in a sentence. The instructor seemed knowledgeable and professional, yet he too "dumbed down" his class. There would be no homework, nor would there be any long term papers; we would do most class work in pairs or small groups and the way to get an “A” would be to show up for class. The class continued to struggle through the syntax of the English language and I became the "floater," that would be the person who went around and helped others with their work. I knew I had much to learn about writing, but little of it would happen in this class.
The program director teaches my first class of the day. On a good day she is 30 minutes late. The first hour is usually lost to waiting and then conversation. Sometimes the second hour is dedicated to learning, but not always. I am continually asking myself, "What I am doing here?" a question the instructor asked me after a few days in class. An Intro Class was not what I needed after having finished the first year of a similar program in Indiana, but it was a requirement. I couldn't help but wonder how this school developed such a program! There are so many incredible programs in other areas that they could have modeled, but instead they seem to have flung together a high-priced imitation that is severely lacking in credibility and substance.
I have consistently dedicated myself to learning, whether I was enrolled in school or not I feel there is something to learn every day. Each book I read and every situation I encounter offers some knowledge that I didn't have before. Perhaps now I am to learn tolerance, patience-- or new ways to waste time and money! It is a shame that colleges don't have to abide by the same standards as public schools. I am too old to be a soldier.
Sunday, January 08, 2006
Update from Texas
I am sorry that my content has been lacking again. I got an email from my brother (jwrblog.com)and he just couldn't imagine that with all the changes in my life lately there was nothing to say on my blog. So I guess I better catch you up with my life. We are doing very well in Texas. It is such a change from the mid-west. My son, Jordan, likes school. I never thought I would be saying that. He does not love doing homework, but he is not complaining, fighting, and refusing to go to school. He comes home and tells me that he had a good day. On Friday we got his first report card since we arrived in Texas. He is passing all of his classes; some with C's and B's. Those of you with a bipolar child struggling in the public school system know what an accomplishment this is.
I don't want to lead you to believe that it is all due to a change in environment, but I feel that has a great deal to do with it. I went from having a child that I struggled daily to keep alive to a child that is glad to be alive. I objected to the addition of Lithium to Jordan's medication regime for years because I was afraid of the side effects, but when it was the only option left I agreed to give it a try. The doctor stopped the Abilify and began the extended release Lithium. It was several weeks before we saw any improvement and not until a few weeks after we had moved to Texas. Jordan was on the Lithium for about 8 weeks before I noted any improvement so I don't know if all the credit should go to the medication or the move to Texas. Whatever the reason I will accept the change. I have a child who laughs again, he likes his life and he has a wonderful and funny personality. The difference is night and day.
I realize that the ups and downs will continue; I am not naive when it comes to this disorder, but I will gladly take the good that I am offered now and regain my strength for the possible bad that could be to come. Until I know if it is the Lithium or the environment...God Bless Texas.
I don't want to lead you to believe that it is all due to a change in environment, but I feel that has a great deal to do with it. I went from having a child that I struggled daily to keep alive to a child that is glad to be alive. I objected to the addition of Lithium to Jordan's medication regime for years because I was afraid of the side effects, but when it was the only option left I agreed to give it a try. The doctor stopped the Abilify and began the extended release Lithium. It was several weeks before we saw any improvement and not until a few weeks after we had moved to Texas. Jordan was on the Lithium for about 8 weeks before I noted any improvement so I don't know if all the credit should go to the medication or the move to Texas. Whatever the reason I will accept the change. I have a child who laughs again, he likes his life and he has a wonderful and funny personality. The difference is night and day.
I realize that the ups and downs will continue; I am not naive when it comes to this disorder, but I will gladly take the good that I am offered now and regain my strength for the possible bad that could be to come. Until I know if it is the Lithium or the environment...God Bless Texas.
Subscribe to:
Posts (Atom)